Sebastian's Action Trust, are a Queen's Award winning charity which aims to walk alongside families of life-limited and life-threatened children from diagnosis, through treatment and beyond.
To achieve their aims they provide outreach and advocacy to support families journeying through their child's illness. The support is offered to families across Berkshire, Surrey and Hampshire and it is offered both in the home and at the child's hospital bedside. In October 2014 they opened their first Family Services Hub. The Hub which is based in Slough offers local families with a life-limited or seriously-ill child the opportunity to access support, friendship and information which can help them cope better with their child's devastating condition.
In addition to their outreach programme they run the UK's first purpose built family respite holiday home called The Bluebells. The Bluebells offers families who often have little time left the opportunity to holiday together in a safe-space, away from hospital, gruelling treatment schedules and prying eyes. Families from across the UK can visit the house if they have a seriously-ill or life-limited child because there simply is nowhere else like it.
It is this commitment which has led to Sebastian's Action Trust being awarded the Queen's Award for Voluntary Service; scooping the Pride of Britain Special Recognition Award and being recognised at the recent Pride of Bracknell awards.